Just changed my first feeding tube!! That was intense psychologically, but to my surprise was technically easy....I feel like I just sweat a bucket, though!! 😰
The next time should be easier....🤞
This ray of sunshine just turned SIXTEEN!!!
Elise’s school nurse organized a fun little car parade outside our house and it was so FUN!!!🚗🚕🚙🚌
Thanks to everyone who participated and helped make Elise feel special!! She LOVED all the extra attention!! Special shout out to her school nurses, teachers, and paras who drove from all over to come and put this on!! You guys ROCK!! 🌈💗🥳
This blog is all about this spunky, sweet, independent, loving girl and what life is like living with lissencephaly. Welcome!!